WHAT IS CYSTIC FIBROSIS?
Cystic fibrosis primarily affects the lungs and digestive system because of a malfunction in the exocrine system that’s responsible for producing saliva, sweat, tears and mucus. There is currently no cure. People with cystic fibrosis develop an abnormal amount of excessively thick and sticky mucus within the lungs, airways and the digestive system. This causes impairment of the digestive functions of the pancreas and traps bacteria in the lungs resulting in recurrent infections, leading to irreversible damage. Lung failure is the major cause of death for someone with cystic fibrosis. From birth, a person with cystic fibrosis undergoes constant medical treatments and physiotherapy.
Cystic Fibrosis Queensland is the peak community, not-for-profit organisation working with and for people with cystic fibrosis. Its mission is to assist everyone affected by cystic fibrosis to be well and live fuller lives. It provides information, support and guidance to people living with cystic fibrosis and their families. It advocates for services and systems that support the cystic fibrosis community and seeks to raise awareness, understanding and funds for services and research.
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Cystic fibrosis is the most common genetic, life shortening condition. There is currently no cure.
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Approximately 1 out of 25 Australians are genetic carriers for cystic fibrosis.
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1 in every 2,500 babies in Australia will be born with cystic fibrosis.
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Cystic fibrosis a complex condition that affects the respiratory, digestive and reproductive systems.
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People with cystic fibrosis often require relentless treatments, significant daily medications, physiotherapy and frequent hospitalisations.
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The average life expectancy for someone with cystic fibrosis born today is 37.
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Most people with cystic fibrosis undertake a range of treatments each day to maintain the health of their lungs.
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Regular visits to cystic fibrosis clinics, hospitalisation and antibiotic treatment are common for people with cystic fibrosis.